You can help us raise awareness for the 125,000 people diagnosed with Carcinoid and NET cancer.

Don’t miss this opportunity to show your stripes by participating in the first ever Project Zebra: Community-Based Research for Carcinoid and Neuroendocrine Tumors in the United States. Your contribution will help us increase awareness and education about this rare condition.

October 5, 2016 UPDATE: Thank you for your interest in Project Zebra. We had an overwhelming response with over 200 interested participants. Recruitment is now closed for this particular project. In the meantime, you can check out the Carcinoid NETs Health Storylines self-care app as you await the Project Zebra Report that will be released on November 10. Stay tuned!

Project Zebra is in partnership with the Carcinoid Cancer Foundation


How do I take part?

You can participate if you:

  1. Are diagnosed with Carcinoid Cancer and/or Neuroendrocrine Tumors

  2. Have not been on an oral or injectable treatment; or are currently on, or was previously on, an injectable treatment

  3. Live in the United States

  4. Have a smartphone or tablet (Android or iOS)


What will I do?

Use a mobile app to complete a 20-minute survey on your experience with Carcinoid and/or NET cancer.

You also have the opportunity to track your health on the app for up to two months, and/or participate in a phone interview.

All results from this research study is de-identified (anonymous). We respect your trust in us and any information that is disclosed as part of this initiative will remain in strict confidence. 

Why should I participate?

We believe that there is value in sharing your experience, and we want to help you make your story count.

You will receive $50 by simply completing the in-app survey.

You can also participate in more aspects of the ongoing research, and for this added participation you will receive up to $100-$200 over two months.