Do you want to be the voice of your community and inform researchers about what it’s really like to live with an invisible disease like Ankylosing Spondylitis (AS) or associated Spondyloarthritis (SpA) diseases?
We are calling everyone with AS or SpA to be part of The Spondy Project. This is a community-based research project to better understand the experiences of people, like you, living with this invisible illness.
The Spondy Project is brought to you in partnership with the Canadian Spondylitis Association.
How do I take part?
You can participate if you:
Are diagnosed with Ankylosing Spondylitis (AS) or associated Spondyloarthritis (SpA) diseases
Live in the United States or Canada
Have a smartphone or tablet (Android or iOS)
What will I do?
Use a mobile app to track your health, and share your experience with AS or SpA for up to four months.
All results from this research study is de-identified (anonymous). We respect your trust in us and any information that is disclosed as part of this initiative will remain in strict confidence.
I'm a Spondy - why should I participate?
We believe there is value in sharing your experience, and we want to help you make your story count. By participating in this project and sharing your experience through the AS Health Storylines app, you will receive up to $100 from Self Care Catalysts.
Are you a Spondy? Fill out the form below to participate.