People living with chronic illnesses often face a different set of challenges – challenges that are not necessarily just physiological or medical in nature. The less palpable aspects of everyday life with a chronic illness are often left unspoken about.
Join us in transforming perspectives about chronic illness and the way we manage it, to celebrate the greatness in ordinary accomplishments that patients face everyday.
With the SELFCAREMVMT Summit, we want to educate and provide practical advice to people diagnosed with chronic illnesses on how they can transform the seemingly ordinary activities of daily life into avenues for empowerment.
Margaret Trudeau | Keynote Speaker
Margaret is a Canadian icon, celebrated both for her role in the public eye and as a respected mental-health issues advocate. From becoming a prime minister’s wife at a young age, to the loss of both her son and her former husband, to living with bi-polar disorder, Margaret tirelessly shares her personal stories to remind others of the importance of nurturing the body, mind, and spirit.
Filomena is the Director of Education & Clinical Information at the Colorectal Cancer Association of Canada. She has been a strong patient advocate for equal and timely access to effective therapies to improve colorectal cancer patient outcomes. As a caregiver to her father who was afflicted with metastatic cancer, her journey has served as the impetus for the development of the CCAC’s unique and highly successful patient & caregiver information/support programs.
Kirsten, age 28, began experiencing symptoms of Systemic Juvenile Idiopathic Arthritis (SJIA) shortly after she started kindergarten in 1993, but it took a host of misdiagnoses – including leukemia – to find the answer. She runs her own websites: Not Standing Still’s Disease, which focuses on her battles with multiple chronic illnesses; and Chronic Sex, about how chronic illnesses and disabilities affect Quality of Life issues including self-love, self-care, relationships, and sex.
Kristin M. Coppens
Kristin works in the healthcare world on social media and digital communications. Named Social Media Maven of the Year in 2015, she has used those skills to better the healthcare experience and raise awareness for patients with invisible illnesses. Kristin is an active ePatient who fights and blogs about multiple chronic diseases and is determined to win. Patient engagement and patient experience are both at the forefront of Kristin's expertise and advocacy initiatives as we work together to create, implement, and further the digital innovations of the healthcare system.
Diagnosed with Stage III breast cancer in 2013, Marinette was recruited to be a volunteer patient family advisor while still undergoing radiation treatment. She is Co-Chair of the Patient Family Advisor Council at the London Regional Cancer Program, and a storyteller. She believes that facing a serious illness can be a life altering experience, and an opportunity to re-assess what matters to you. For her, there are four Fs that sustain her daily: faith, family, friends, and fun. On a perfect day, all would be present.
Robert is a speaker, author and patient advocate. He has uplifted and entertained audiences at conferences, medical schools and universities. He has developed content for Princess Margaret Hospital, The University of Toronto Medical School and The Ontario Hospital Association among others. Rob’s books include Kicking Cancer's Ass: A Light-hearted Guide to the Fight of Your Life and Doing Happiness: Uncovering the Hidden Benefits of Feeling Good.
In 1983 John was diagnosed with Crohn’s disease, undergoing several major surgeries while building his career with Cadbury in consumer marketing roles in the UK, Canada and on global assignments. Since leaving the corporate world in 2003, John has carved out a new twin-track career in consulting and as a writer. In 2008 John had his first book published: Cadbury’s Purple Reign and in January 2011 published a book on living with Crohn’s disease, The Foul Bowel: 101 Ways to Survive and Thrive with Crohn’s Disease.
Sandra Rotholc, RP RSW RMFT RST
Sandra has been practising for over 18 years as an Individual, Couples and Sex Therapist. She has a special interest in coaching people to have healthier relationships. Sandra worked for 4 years at the BC Cancer Agency, where she helped formulate and facilitate prostate cancer forums and children’s groups. Sandra also volunteers through ELLICSR to educate on Sex and Cancer . She teaches through DaSouza Institute on Sexual Health and Cancer.
Lucinda Sykes, MD
Dr. Sykes teaches medical programs of mindfulness, and is the founder and director of Meditation for Health – a Toronto clinic providing programs of mindfulness-based stress reduction (MBSR) to patients. She has trained through the Center for Mindfulness at the University of Massachusetts, and has attended numerous educational events led by the originator of MBSR, Dr. Jon Kabat-Zinn. With her background in family medicine and psychotherapy, Dr. Sykes has a special interest in mindfulness as an everyday practice for those coping with disability and chronic illness.
5:00 PM - 5:45 PM
Registration & Appetizers
5:45 PM - 6:00 PM
Filomena Servidio-Italiano and Grace Soyao, Founder & CEO of Self Care Catalysts
6:00 PM - 7:00 PM
Keynote Presentation: Margaret Trudeau
Canadian Icon Margaret Trudeau offers audiences an inspirational and practical approach to choosing a healthy, happy, and secure future. Using stories from her own life, as well as those of others, Margaret–with the remarkable empathy and warmth she’s known for–brings attention to what people need to make their later years meaningful and fulfilling.
7:00 PM - 7:30 PM
Panel: Stories on Self-Care
Kirsten Schultz, Kristin Coppens, and Marinette Laureano
7:30 PM - 7:50 PM
Self-Care and Intimacy Matters: Love and Healing Yourself
7:50 PM - 8:10 PM
Managing Chronic Illness in the Workplace
8:10 PM - 8:25 PM
Mindfulness: Living in the Present Moment
Dr. Lucinda Sykes
8:25 PM - 8:45 PM
Taking The Laughter Pill: Humour And The Patient Journey
8:45 PM - 9:00 PM
SELFCAREMVMT Design Challenge & Closing Remarks
The event will take place in the auditorium at the lower concourse of the MaRS Discovery District, located at:
101 College Street
Toronto, ON M5G 1L7
Underground parking is available at the MaRS Centre at a cost of $4 per half hour, to a maximum of $20. The MaRS Centre underground lot can be accessed via Elizabeth Street, just south of College Street on the west side of the road. It can also be accessed via University Avenue when driving northbound, just past the Peter Munk Cardiac Centre, south of College Street. Substantial additional parking is available at a host of parking garages and above ground lots within a two-block radius.
MaRS is easily accessible by major modes of transportation, with direct access to public transit.
For information on overall accessibility of the MaRS Centre, including details on amenities and alternatives, and a list of assistive devices and services available for guests, please click here.
Subway: MaRS offers direct access to the Queen’s Park subway station, with connecting service to Go Trains at Union Station. The College subway station is a 5-minute walk away.
Street Car: The College Street streetcar stops at the corner of Elizabeth St & College Street at the north-east corner of the MaRS Centre.
By charter bus
The main Toronto Bus Terminal is located a short five minute walk away south of the MaRS Centre on Elizabeth Street.
Email or call us at 1844.475.4637