Engage in at least one of these activities that help you feel normal and post your experience. Share a story, or a photo with the community and weigh in on whether you would add to this list. Share the barriers that prevent you from tackling the daily tasks that help you feel well.
The Self Care Movement is a fast growing community, promoting evidence-based self-care among patients and their support networks living with chronic health conditions and rare diseases. Our mission is to ensure patients’ experiences and views are at the center of health care decision making, from the choices of daily living, to decisions around drug discovery and development.
We are strong, admirable role models because we have no choice but to fight for sanity and purpose every day of our lives, with every beat of our heart, with every step of our feet or our cane or our walker or our wheels.
For Kristin, physical self-care is "about being kind to yourself. No one is perfect, and you can’t beat yourself up for that. Push yourself to accomplish what gives you the highest level of physical self-care, but don’t lose it all for one tiny step back."
"One thing I’ve learned while navigating the journey of chronic illness is that you have to be kinder to yourself." Kristin shares how she's getting better at self-care by focusing on what her body needs, what it doesn’t need, and when/how to push through if possible.
Living with A.S. and other Spondyloarthritis diseases entails challenges that often go unseen to others. Whether it’s getting out of bed, cooking dinner, or going for a walk; we want to hear what you do everyday to overcome A.S.